Westley has been diagnosed with Duchenne Muscular Dystrophy.

Back in town and Fundraising is in Full Swing!

We returned home from Cincinnati Children’s Hospital exhausted! Exhausted really doesn’t even cover how we felt to be honest. After a little time to reflect and process the information we are happy to be home with a healthy checkup. My two main concerns where pulmonology which has remained in the normal range and cardiology. I quote the doc “If you put his heart next to a normal child of his age you wouldn’t be able to tell the difference.” Needless to say when he left the room I shed a few happy tears. Overall we left with lots of great news but there are still a few things we need to work on medically and new equipment to procure to help Westley’s at home.

We didn’t have much down time when we returned because we had our BIG benefit concert to plan!!!! So much work (all good) has gone into making Saturday’s event, MD Palooza 2015 what is sure to be a great time for all. We can’t believe all the donations that have been made to make sure everything is in place! We truly know the best people!

For those who can’t make the event we kindly ask that if you find it in your heart to help us END Duchenne that you make a donation to PPMD at our fundraising site. All proceeds go to the fight against Duchenne. http://www.parentprojectmd.org/site/TR?fr_id=3920&pg=entry

September 19th @ 2150 Anderson Hwy, Powhatan, VA 23139
Gates Open at 4PM
Adults – $10 
Kids under 17 – FREE

Thank you for your continued love and support in our fight to End Duchenne.


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