Westley has been diagnosed with Duchenne Muscular Dystrophy.

Archive for October, 2014

Westley’s Wheels – Go Fund Me Campaign

Dallas and I have been encouraged by a few to start a Go Fund Me campaign for Westley. We don’t feel quite worthy but we are lost for options at this point.

We humbly request your help to provide a wheel chair accessible vehicle for Westley. We have been saving and working hard to make this purchase but with the cost of the addition we have come up short and Westley’s new power wheel chair will be here in about 2 weeks.

Without this van Westley will only be able to attend school in his new power chair. It’s medically necessary that he use this chair going forward to provide better air flow, circulation and posture. We’ve picked out a van (the blue one shown in the photo) and hope to be able to surprise Westley soon.

Please pray on this and if you find it in your heart to help no matter the amount we will be forever grateful.

God Speed,

Dallas and Jessica Groseclose

 

Donations can be made here gofundme.com/g3vpew

 


Warrior Update

The eagle has flown the coop

Well not really; he just moved down the hallway. Westley’s Wing is finally done. I do have some touch up painting to do but we went ahead and moved him in. Dallas and I are so grateful to our builder Rick Smith at RBS Inc. and all the amazing contractors that worked in our home over the last few months. So many companies, family and friends made donations to make this room extra special for an extra special little boy. Westley is loving his new “hotel suite” as we have been calling it. Wyatt is surprisingly happy living alone and can’t wait until we can redo the decor to match his personality. We do plan to have an Open House sometime this holiday season so keep a look out for an invite. There are tons of photos that cover start to finish of the project here – https://www.facebook.com/media/set/?set=a.10204168609553083.1073741834.1161708178&type=1&l=1009fcf750

Hot Wheels

Westley’s new wheelchair should be delivered in about 2 weeks! We were told that Medicaid would deny the stander option of the chair upon submission along with a few other things but God was looking out for us and they are covering every option 100%!!!!! For now he will only be able to use it to go to school but once we get an accessible van the sky’s the limit! He even plans to play Power Soccer through the Sportable organization! (PS I know it seems odd to be so happy about your child getting a wheelchair.)

It’s the Final Countdown

13 days from now we will be in (hopefully) sunny Florida! Westley’s make a Wish A Wish trip is 10/29-11/4 and we can’t wait to have this special family time to make lasting memories. We are very thankful for the Make a Wish organization as they are giving our children (and us) a trip we could never provide for them. We are excited to be staying at Give Kids the World during our trip. This place is just as magical as Disney itself. I’ll be posting a few pictures on Facebook during the trip so keep a lookout for the cutest wish kid around.

 

Lastly I would like to ask that everyone send some special prayers out for Wyatt. Duchenne affects more than just Westley. Dallas and I cope but Wyatt is still an adolescent and can’t quite process the situation as well. His OCD is steadily increasing and we believe he’s developed a panic disorder. We as parents are no strangers to the later but it breaks our hearts to see Wyatt struggle with these issues. Sometimes these conditions get in the way of his true self. Thankfully he has a great group of teachers surrounding him and Dallas and I are working on a plan of action to help our not so little guy find peace.

Hope everyone is enjoying the beauty that is Fall.

God Speed,

Jessica