Westley has been diagnosed with Duchenne Muscular Dystrophy.

Archive for November, 2013

Reunited and it Feels so Good

Saturday presented to be another amazing adventure for our family. Liberty University extended an offer to attend a game WITH pregame sideline passes! We arrived and were greeted with open arms by Coach Gill’s wife Gayle; who organized our entire day.  God Bless Her! We were whisked up to a fancy buffet lunch and back down to the side lines where a few of the players were already warming up. We were amazed at how many of the young men came over to greet Westley with a fist bump and to shake our hands. Such amazing guys!

Coach Gill emerged onto the field holding what we thought was just an ordinary football. When we were unable to make the actual Coach to Cure football game in September the team promised to play in Westley’s honor. Liberty ended up winning over Kentucky Wesleyan 73-7! They saved a game ball and had it personalized just for Westley. He was pretty happy as Coach Gill presented it to him and explained what it was. Dallas and I were in awe. Not only were we being treated like royalty but these men; this team had thought ahead and created a football like no other for our son. The thought and love that went into that ball over joys me. Westley quickly explained to Wyatt that “THIS ball is not for throwing” and we would placed on the trophy shelf with Wyatt’s baseball trophies.

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We all enjoyed watching the Flames beat VMI 17-7 (while the boys ate their weight in cookies and brownies). It happened to be Military Appreciate Day. The half time show was grand and made us all proud to be Americans and thankful for all the men and women who have fought and continue to fight for our freedom.

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When the game ended we headed down to the field to congratulate the team. The boys thoroughly enjoyed racing up and down the field. I mean; how many kids get to do that in their lifetime! At one point a man flagged down Westley and asked for a ride on his scooter. Westley didn’t know it but it happened to be Jim Kelly; former QB for the Buffalo Bills! (and no; he refused him the ride) lol

The ride home was quiet with the occasional statement from Dallas or I about how blessed we are. Westley may suffer from DMD but God had granted us so many opportunities to put on a smile on Westley’s face and to show the world DMD will not drag us down.

At bedtime Westley snuggled that game ball like a fluffy teddy bear and fell asleep with a grin on his face. God is Good.

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