Westley has been diagnosed with Duchenne Muscular Dystrophy.

Archive for May, 2011

Recalculating

WW

Recalculating

It has been nearly 9 months since Westley’s diagnosis (September 2010) and yet it seems years have gone by. Maybe because we have accomplished so much in the last 9 months and yet our GPS is still reading “RECALCULATING”. After the initial shock and heartbreak had worn off a bit Dallas and I started talking about when we would find our “new normal”; when would the GPS finally show the directions for our new destination? It seemed every breath; every activity of every day was all related to Muscular Dystrophy. Months had gone by but this way of life didn’t seem to be passing.  All the doctor’s appointments and educating family, friends and school was overwhelming. We are blazing a trail and we thank God that the folks who surround us want to be educated and help in any way they can.  After 9 months I can honestly say I am still overwhelmed with all that needs to be done to maneuver down this road but I have found a way to cope with a smile on my face. We are truly a blessed family and muscular dystrophy has not altered that. We never expected our path to change in life so abruptly but we have come to realize that the path might be slightly different but the scenery is still the same. The GPS is still reading “Recalculating” but I can see progress… 50%, 60%, 70%…..  Our GPS wouldn’t be so far ahead if it weren’t for all the amazing doctors, nurses, MDA staff, co-workers, family and friends that have stepped forward to help and pray. We are honored and proud to be able to say that the Groseclose family truly knows the best people this world has to offer.

Time, hard work, education and prayer keep us moving forward. For now this “new normal” is ok with us; we are happy to have 2 amazing little boys who take life and all it throws at them with dignity and a strength that amazing even me.

God Speed,

Jessica

 “We don’t know how strong we are until being strong is the only choice we have.”